So I can't remember exactly where I left off but Esme was admitted to the hospital on Monday and given a 12 hour dose of IVIG. That kept her fever away for just 12 hours and then it returned for a full 12 hours despite a high dose aspirin regimen (that's normal protocol for Kawasaki's and there's minimal concern for Reye's syndrome). So yesterday, Wednesday, she received a new medication called Remicaid and that seemed to do the trick. She hasn't had a fever since then and it's almost been 24 hours. Last night she slept well and this morning she actually ate breakfast!!! She had 2 pieces of bacon and a banana. Her rash is subsiding and she can finally tolerate being on her feet. The pain and swelling has kept her from walking since she got admitted. This morning they got rid of her IV so she's no longer hooked up to IV fluids or the pole. She's a happy camper! Esme's gotten her fill of Frozen, the only on-demand movie that she's wanted to watch this whole admission. And she keeps talking about going home to see her Nana and Chan-Man.
Chan's been a trooper through all of this too. He's been at either Aunty Amy's, Aunty B's, or Nana's house while we've been gone. He's gotten a lot of papi (pacifier) time for comfort and his beela (special blanket) but at least he's had those things. We've been able to Face Time with him and surprisingly didn't cry at all. Seems like he's having a lot of fun without us!
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